the weekend

so, this weekend i'm back on hydroxurea. it is miserable. my mouth is already starting to feel it--raw, like i've eaten half a dozen or so lemonheads (remember those?) only i didn't get the joy of eating the lemonheads, and only have the sore mouth. additionally, i'm having some bone pain, which is utterly miserable. i'm on medication to prevent gout, but my right toe joint hurts, which worries me a bit. as well as my right hip hurting, way down deep inside.

i did some checking and it appears that the cancer care clinic here has two oncologists who are also hemotologists--and somehow i'm not seeing one (weird i know). so tomorrow i intend to ask to talk to the admin. because i'm pretty ticked at the way dr. robinson has behaved, and in the process ask to be reassigned to one of the hemotologists, who, i would assume, deals more with leukemia, than a random oncologist. not sure about that. we'll see how it goes. i guess i can't play the cancer card at the cancer care clinic. i'll try to remember that.

on the plus side i had a lovely couple of days. first my father's family was having a family reunion here in rapid, and i got to see lots of relatives that i seldom see, and then sharon and i went to the special opening of the park across main from the yarn shop. i went to mass this morning with my aunts and uncles, and received the sacrement of the sick. not something i'd necessarily thought about, but it was nice. the mass made me cry, i've been on the edge of tears again today, having real difficulty holding them back. i really hate that. a lot. it makes me feel weak. and crying in public is particularly bad. i cried on grant's shoulder (my dad's younger brother). it made me miss my dad. and made me realize that i need to stay in better touch with these people. my dad's brother zane looks so like dad did.