i suggested we go shopping today. i just needed to get out of the house. so we went to "someone's in the kitchen", a very nice kitchen store and bought a fruit infusion pitcher. the basic idea is that it has an insert that you put fruit it, and then pour water over it and have flavored water to drink. i decided that if i was supposed to drink huge quantities of water every day, and when i toss in the way my taste buds and taste is changing, that this might be the answer.
i'm hoping that the alteration in taste is the hydrea (which i'm hoping i'll be off tomorrow) and not the leukemia, but i'm not sure. everything tastes too much. salty things are too salty, sweet things are too sweet, tea is too tea-y, everything. so this pitcher i'm hoping will not over flavor the water, but will make up for the fact that nothing really appeals except water (and occassional herb tea) but water makes me feel a bit floaty when i drink too much.
we also went and bought a new coat for me. my old coat in size 1X does not fit my new size 8-10 body. at all. so i found a lovely black, slightly longer coat. it fits nicely and does a bit to disguise my spleen enlarged belly. if it was the size of a basketball a month ago, unfortunately it's still about the size of a slightly deflated basketball. but most of the abdominal pain is gone. it's funny. i never had any real abdominal pain BEFORE the diagnosis. just that occassional stitch in my side. but somehow after the initial hydrea treatment, during the two weeks off, i had quite a lot of abdominal pain, especially in the evenings. anyway. after the coat, i also bought a hat. not a ski cap, but a wool felt hat. it's stylish and cute and rather 1940s or something. i love it. even with the new hair. maybe even more with the new hair. the hat is maroon and looks cute with the coat. and jeremy thinks it's great.
so, things are fine. i have an appt. with dr. robinson tomorrow. hopefully we can build some understanding of what i expect and what he can offer. and hopefully i can start the gleevec tuesday when it arrives. at least then i'll feel like i'm doing something.
took a nap after the shopping trip. amazing how little energy i have. how little i can walk before i'm really tired out. hopefully that will change with the gleevec as well.
i want to start exercising. maybe soon. when i have more energy.
wish i hadn't missed crown. :)
Good Luck with Dr. Robinson! I hope the new water pitcher works like you would like it to. Hopefully you will be off the hydrea! Welcome gleevec!!!
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I want a pic in your new hat and coat.... Smiles....
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