i had this realization today. i feel like i've been betrayed. by my own body. and therefore, i can't believe any of the things my body might do are normal. every single thing that is odd or that i hadn't noticed before is now suspect. is it caused by my leukemia? is it really really aweful?
additionally today after 2 weeks of waiting on gleevec i finally asked the cancer care clinic to do a blood draw. sure enough my WBCC is back up to 88,000 (normal 4,000-10,000). it doesn't really make me trust my doctors or the clinic when they didn't keep track of this. i get that i need to responsible for my own health, but i wasn't expecting to have to be responsible in quite this way.
Unfortunately you are one of many people and only you can make sure you get the best care. It really sucks but with all 6 of Johns surgeries and follow ups I quickly learned what we needed to "remind" them about because they would let us know. It sucks but keep on top of it!!
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