so, this is going to be one of those TMI kind of posts that you may not really want to read. it's about bodily fluids and such, so be warned and don't read further if you'll be upset.
for years, since my c-section with amanda (19 years ago now) i've had digestive issues, on and off. i've quit eating at perkins because i often make several trips to the bathroom in quick response, with terrible diarrea. i've learned over the years what i can tolerate and what i can't, and for the most part i've learned to live with it. it's never been fun, but it's been livable.
for the last 3 days i've been living through a trip to perkins every morning. it seems to be settled down by afternoon mostly, but mornings, especially the first few hours are spent mostly in the bathroom. additionally, i feel nauseated almost constantly. more so if i allow my stomach to get empty. also, i have an odd rash over most of my trunk (abdomin, back and thighs in particular). it is little red bumps, they tend to be a bit itchy but not much else. all of these responses are apparently typical responses to Gleevec. on monday we'll see if i'm having the other more positive typical responses to Gleevec.
Hang in there.
ReplyDeleteI feel for you and hope that all this is worth the troubles you are going through. May this be only a adjustment to the need and that it passes soon... My thoughts are with you..... Some more comfy stomache and belly good feel vibes being sent your way... Love you.
ReplyDeleteHang in there, Rita! I stumbled on your blog tonight -- I am your age and was diagnosed with CML back in March and started on Gleevec in April. It does get better, although I still get the occasional Perkins "incidents". TMI - ha! That's a common side effect with Gleevec, but it pales in comparison to the alternative. Feel free to check out my blog and compare stories. Also, check out the National CML Society. They are starting face-to-face support groups all over the country, which might be a good resource for you. My thoughts are with you as Gleevec gets things under control. :-)
ReplyDeleteA little lotion down there helps with the rawness. FYI-TMI. I am so praying and sending positive thoughts your way that this is the most "uncomfortable" it gets for you. I am praying for positive things Monday!!!!
ReplyDeleteHugs & Prayers!!!!
Are you having the more positive response? What did the doctor say?
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